Cystic Fibrosis EpiNet

Cystic Fibrosis is one of the most common genetic diseases in white populations. Survival has hugely improved over the last 50 years but these advances are not shared equally across the population. Although incidence is independent of socio-economic status, outcomes are much worse in individuals from poorer backgrounds. We are using routinely collected data to identify when, in the life course of individuals with Cystic Fibrosis, inequalities arise and therefore what policies can be developed to prevent these.

This project is led by David Taylor-Robinson at the University of Liverpool and is part of the EpiNet Strategic Research Centre which is a collaboration of clinicians and researchers from the Royal Brompton Hospital, Imperial College London, London School of Hygiene and Tropical Medicine, University of Liverpool, Lancaster University, University of East Anglia and University of Nottingham. EpiNet is funded by the Cystic Fibrosis Trust.